Survey: Living with ME in New Zealand


ME Awareness NZ has organised a brilliant survey about ME in New Zealand! If you can spare 20 minutes, it'd be wonderful if you could take part.


Your time will give a voice to New Zealander's living with ME.


From ME Awareness NZ

We invite you to complete the "2020 Survey - Living with ME in NZ". To get started, click here. 


The purpose of this survey is to investigate how People with ME* manage their illness in New Zealand. The statistics and information from this survey will be used to provide evidence of people's experiences to the NZ Government, relevant organisations, and the general public.


Who can complete the survey?

  • People of all ages living with ME in New Zealand are invited to complete the survey.

  • Support people and carers can answer the survey on behalf of the person with ME that they support.

  • Please share the survey with other people that you know with ME, to help get as many experiences as possible included in the survey results


We hope you will be able to participate. We want your story of living with ME included in the results. We need to let the NZ government know about some of the realities of life with ME!!


All of the questions in the survey are optional, and you can take your time to complete it. We expect that the survey will take about 20 minutes, although it does depend on how much you want or have to say.


We would love to have some responses back by 8th May, but will leave the survey open until 1st of August 2020.


* ME is Myalgic Encephalomyelitis. Sometimes referred to as Chronic Fatigue Syndrome, ME/CFS or Tapanui Flu.